The open patient movement Patient advocacy groups lead efforts to make health data flow.
In 2014, Steven Keating, a graduate student at the Massachusetts Institute of Technology (MIT), was diagnosed with a baseball-sized brain tumor. Besides having to go through surgery, chemotherapy and radiation, the experience gave Keating a close-up view of the dysfunctional nature of the U.S. healthcare data ecosystem and led him to become an advocate for open health data.
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