Reimagining the clinical trial registry
Even if patients are generally aware of clinical trials, where do they learn more details about them? The commonly accepted place where the information is kept is in government registries such as clinicaltrials.gov. Surveys have shown patients trust them the most. "They start digging there, but often they do not find information that is pertinent or understandable," Moreira says, "and they start losing interest and all the work around awareness goes down the drain."