The open patient movement Patient advocacy groups lead efforts to make health data flow.
In 2014, Steven Keating, a graduate student at the Massachusetts Institute of Technology (MIT), was diagnosed with a baseball-sized brain tumor. Besides having to go through surgery, chemotherapy and radiation, the experience gave Keating a close-up view of the dysfunctional nature of the U.S. healthcare data ecosystem and led him to become an advocate for open health data.
Bill Ives is a Partner with the Merced Group and serves as part of the App Fusions team. His Twitter id is billives, and he blogs at Portals and KM, The AppFusions Blog and The AppGap.